Initiative aims to redefine preventive migraine treatment expectations and spark a new conversation about migraine as a progressive disease
Despite being one of the leading causes of disability worldwide, migraine disease remains misunderstood, and its impact underestimated by society. This is fueled by the risk of disease worsening and lack of recognition around the personal impact of migraine, which may preclude proper preventive care. To help address this critical gap, Lundbeck in collaboration with six migraine patient advocacy organizations is launching the “Raise the Bar for Migraine Care” initiative this Pain Awareness Month.
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“I’m passionate about initiatives like this that educate people on better migraine care, with the hopes that fewer people endure the depths of pain and loss associated with this disease over time.”
This initiative brings together voices from patient and HCP advocates to spark a new conversation among the community. Data from recent surveys conducted by the American Migraine Foundation (AMF) and the Association of Migraine Disorders (AMD), with funding from Lundbeck, underscore the urgent need for improved quality of life for people living with migraine. In the AMF survey of 511 people with migraine, 92% of people who responded said migraine disease has an extreme or fairly big impact on their life, with 83% of respondents wanting their healthcare provider to know how migraine affects their daily life3. Furthermore, 49% of people who responded to the AMD survey of 467 people with migraine said their preventive treatment is somewhat or not at all helping to reduce the frequency, severity, or disability of their migraine attacks. And a notable 68% said they are either extremely or moderately worried that their disease frequency and/or severity might increase in the future.
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“At Lundbeck, we recognize the urgent need to shift the conversation around migraine care from pain and symptom management to a focus on continual improvement for better quality of life for people living with migraine,” said Molly Poarch, Vice President, Corporate Affairs at Lundbeck. “Our collaboration with the migraine community was built on a shared purpose to elevate understanding of migraine as a disabling and progressive disease and redefine migraine care expectations for optimal care, enabling more people to live their lives to the fullest.”
The “Raise the Bar for Migraine Care” initiative champions the belief that better is possible through innovative treatment options, new standards of care, and resources to support more ambitious and individualized treatment goals that go beyond reducing headache and migraine days. As part of this initiative, Lundbeck teamed up with leading migraine advocacy organizations to create a comprehensive, easy-to-navigate online resource. The ‘Patient Empowerment Guide’ equips people with curated patient advocacy resources to support them on their path to better days — whether someone is seeking disease information, preparing for more impactful goal-focused conversations with their healthcare providers, or inspiration from others who understand what it’s like to navigate the spectrum of migraine disease.
Patient advocacy organizations collaborating with Lundbeck on this initiative include AMD, AMF, Coalition for Headache and Migraine Patients, Miles for Migraine, National Headache Foundation, and World Health Education Foundation.
“It’s essential for people with migraine to grasp the complexities of this disease — if it’s not well managed, it can escalate and derail your life. Yet, the severity and life impact in each person can be vastly different,” said Paula K. Dumas, President of World Health Education Foundation and Executive Producer of Migraine World Summit. “Years ago, I wasn’t aware of the risks of disease progression and worsened until I reached a breaking point. Today, I’m grateful that better control is possible. I’m passionate about initiatives like this that educate people on better migraine care, with the hopes that fewer people endure the depths of pain and loss associated with this disease over time.”
About Migraine Disease
Migraine is a complex and disabling neurological disease that limits functionality and quality of life. It is characterized by moderate to severe head pain typically accompanied by an array of symptoms, including nausea, vomiting and sensitivity to light or sound. Over time, migraine disease may worsen, with attacks increasing in frequency, severity and duration. It is estimated to affect more than 40 million people in the U.S. and impacts three times as many women than men. Headache disorders are a leading cause of years lived with disability (YLD) among all diseases and is a top 5 cause for 10–24-year-olds, according to the 2019 Global Burden of Disease study. The impact of migraine permeates into career, home life and relationships
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Source – businesswire
